Question for an Alternate Future

Imagine: Through a genetic test you can find out whether or not you carry the gene for a rare, incurable disorder. This disorder, should you possess the triggering gene, will cause your body to wither and die when you reach a particular age, 28, 36, 44, or what have you. Would you take that test? Would you want to know? Would you not want to know?

Say you do take that test. You do not possess the triggering gene, so your body will not wither and die as described above. However, you carry the recessive gene, which, should you partner with another carrier of the recessive gene, may be present in your offspring as the triggering gene. You may have a child who you know will not live beyond a certain age. Do you even risk having such a child?
***
One day he asked himself:
"If suddenly a cure for diabetes were available, would you take it?" . . . "How does he answer this question?"
What was his first impulse? To say Yes?
"He doesn’t remember what his first impulse was."
Did he answer No?
"He did answer No, after a time."
Why did he answer No to a cure for diabetes?
"He has no answer for Why. It is inexplicable and complex. This is not an easy question. At a later stage of life, he is likely to die from diabetes complications."
Yes, he is. So even if a cure were available, you would not take it?
"No. He is okay with it. He accepts what he will have to face."
That's easy for him to say now. He may feel differently twenty years down the road.
"Stop talking, please."